Tag Archives: bioethics

Ethics committee report on genome sequencing and privacy

Well, this changes my morning. It’s a 150 page report.

Get the report itself here: Privacy and Progress in Whole Genome Sequencing

Press or blog coverage (I’ll update if I see others):

Nature: US ethics panel reports on DNA sequencing and privacy

Science: President’s Ethics Panel Urges New Protections for Whole Genome Data

AP: Bioethics panel urges more gene privacy protection

USA Today: Panel: Protect patients who use whole genome sequencing

AARP: How private is your genetic code? Less so than you might think.


Friday SNPpets

Welcome to our Friday feature link collection: SNPpets. During the week we come across a lot of links and reads that we think are interesting, but don’t make it to a blog post. Here they are for your enjoyment…

  • Snorf. RT @szintri: “underappreciated fact of genome assembly…the choice of assemblers is often limited to those that run without crashing” via @JChrisPires [Mary]
  • RT @yokofakun: the correct URL for VARMD is http://t.co/AvNWueQU  “analyzing the DNA sequence variants produced by human exome sequencing” [Mary]
  • Found this GenomeWeb article interesting – Lot to think about/figure out: “White House Bioethics Commission Tackles Genomic Data” [Jennifer]
  • RT @drbachinsky: Personal genomes hold eventual promise for treatments – Mass High Tech Business News http://t.co/PQFqqbPf [Mary]
  • I’m working on my ScienceOnline2012 report(s), but in the meantime check out this list of blog and media coverage from before, during and after the conference here. [Jennifer]
  • Don’t forget to register & attend our free ‘How to use the RSCB Protein Data Bank’ Webinar, sponsored by the RCSB PDB. The webinar is based on our newly update, full length tutorial and will be presented next Wed. at 2 pm ET. You can register on the OpenHelix webinar page. [Jennifer]
  • RT @JChrisPires: X Prize: Build a Star Trek ‘tricorder’ and win $10m http://t.co/Vt8L63Ub via #science #technology #SciFi #Startrek #genome #bioinformatics [Mary]
  • RT @drgitlin: Will Gene Patents Derail the Next-Generation of Genetic Technologies?:  A Reassessment of the Evidence Suggests Not http://t.co/QdeiwmEp [Mary]
  • RT @m_m_campbell: A healthy marriage. Bringing human #genetics & functional #genomics together to improve #health. Great read http://t.co/AR0XZsXu @NatureNews [Mary]