Man, it seems like everyone wants to hear from us these days….Here’s another request that came via The Genetic Alliance mailing list:
The National Human Genome Research Institute has embarked on a long-range planning process focused on the future of human genome research. To kick-start a conversation among our community, we have posted three white papers on our website to start the conversation on the following topics: diagnostics, preventive medicine, and pharmacogenomics; therapeutics; and education and community engagement.
These white papers are available for viewing and comment at http://www.genome.gov/About/Planning. We invite your review and comment in two phases. Phase 1, open now, will collect community thoughts solely on the questions posed in the white papers, aimed at ensuring we are asking the right questions. Phase 1 will continue through January 30, 2009. Once the questions are refined, Phase 2 will commence and collect community input regarding how best to answer the questions, probably starting in mid-February 2009 and continuing through mid-April 2009. Other white papers on other topics may be added as the process continues.
To stimulate discussion, comments received will be anonymously posted for viewing. Comments received through this white-paper process will be used to generate topics for further planning activities and workshops, which will be held in 2009 and 2010.
We encourage you to participate in this important discussion and look forward to your input. Since we would like this to be an inclusive process, please share this announcement with any colleagues who may be interested in participating.
Alan E. Guttmacher, M.D.
National Human Genome Research Institute, NIH