What does GINA mean?
In the current deadlocked state of affairs in Congress, I am still shocked that the GINA legislation was able to make it through. And although some people didn’t understand why we needed it, it only becomes more clear that the information from even beneficial research could be misused.
The legislation still doesn’t take effect for a while (it begins to protect us only after May and November 2009), but one of the major groups lobbying for this bill has produced a user-friendly interpretation of what we should be able to expect from GINA. Things like what it does prohibit and what it doesn’t prohibit.
Here’s a piece of the press release:
The Coalition for Genetic Fairness today announced the launch of an interactive, online guide to the landmark Genetic Information Nondiscrimination Act (GINA). The resource, “What Does GINA Mean? A Guide to the Genetic Information Nondiscrimination Act” , summarizes the protections of the first civil rights legislation passed in the new millennium and outlines its impact on the future of health in America.
Check it out if you are curious about what GINA will do. You can find the whole thing on the Coalition for Genetic Fairness site and on the Genetic Alliance site as well.
Comments
Pingback from What would you do with your genome? | The OpenHelix Blog
Time March 9, 2010 at 10:50 AM
[...] because I would have refused to even begin the process of obtaining my personal genome sequence until the GINA legislation fully kicked in. But now that barrier is down. I’m still not ready to get mine done for a [...]
Pingback from Genetic studies: how the public feels | The OpenHelix Blog
Time December 4, 2008 at 4:35 PM
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