[Bumped back up because a lot more stuff you need to read broke open over the weekend. Go.]
I know some people are not addicted to twitter like I am, and you may not be aware of the very interesting discussion that goes on there. I wish more people would comment on the blogs they are often addressing, but they don’t. They chatter on the back-channel in this way.
That said, I think there are some important issues being thrashed out here. Follow these threads for more discussion. Click on the time stamps to see some of the follow-up conversations.
— Jonathan Eisen (@phylogenomics) March 18, 2013
— Rebecca Skloot (@RebeccaSkloot) March 16, 2013
— Jonathan Eisen (@phylogenomics) March 19, 2013
— william fitzhugh (@will_fitzhugh) March 19, 2013
Note: my first post on the HeLa genome and the associated paper is here: Protip: check the genome of your cell line. HeLa cells are “strikingly aberrant”
UPDATE: Rebecca Skloot has an article in the NYT about this: The Immortal Life of Henrietta Lacks, the Sequel
Update part deux: Jonathan Eisen is keeping a storify about the discussion: http://storify.com/phylogenomics/hela-genome-sequenced-w-o-consent
And more–this conversation has broken wide open, in a good way. These are important issues–real issues–to be wrestling with:
Michael Eisen’s response to Rebecca Skloot’s piece (and be sure to see the comments): The Immortal Consenting of Henrietta Lacks
Razib Khan: Henrietta Lacks’ genome, and familial consent
Peter Lipson: The Frontiers Of Medical Privacy
— Dan Vorhaus (@genomicslawyer) March 24, 2013
Ivan Oransky at Retraction Watch: Geneticists take HeLa sequence off-line after Lacks family notes they hadn’t given consent
Antonio Regalado The Dawn of Genome Trolling. A slightly different take on HeLa.
Ewan Callaway HeLa publication brews bioethical storm
Curtis Brainard HeLa-cious coverage
Tabitha Powledge On science blogs: Immortality